International Prader-Willi Syndrome Organization
Join LUMomma! 5K 10AM Saturday May 10th Hickory Creek Preserve, Wolf Road, Mokena, IL 60448
Showing Our Love & Support for Prader-Willi Syndrome. Its a genetic disorder characterized by obesity. PWS typically causes low muscle tone, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to excessive eating and life-threatening obesity, among many other medical and developmental issues. PWS is the most common known genetic cause of life-threatening obesity. Prader-Willi syndrome is a life-long condition and currently there is no cure.
Defective or missing portions of paternal genes responsible for Prader-Willi syndrome usually occur randomly. Prader-Willi syndrome can be prevented by early detenction. In a small number of cases, a genetic mutation inherited from the father may cause Prader-Willi syndrome.
Did you know Clint Hurdle, Texas Rangers Hitting Coach is a proud father of beautiful Maddie with PWS. https://www.youtube.com/watch?v=S-ECQ7s9B2A
Giorgio Fornasier, President of the International Prader-Willi Syndrome Organization speaks about PWS in Spanish. Presented recently on Vatican Radio and aired all over South America. To hear Mr. Fornasier, click on the mp3 audio links above. http://www.pwsausa.org/Spanish/sound/00311257%20120412.mp3
Listen to 9 year old Louis from Ireland speaking about PWS. http://youtu.be/L2J_8E4NYgU
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. http://www.firstgiving.com/fundraiser/amateahora/i-heart-momma
Many thanks for your support — and don’t forget to forward this to anyone who you think might want to donate too!
Saturday May 10th at 10AM Register Day of 845AM-945AM
Hickory Creek Preserve – LaPorte Road Access
10537 La Porte Rd
Mokena, IL 60448